Caregiving Disrupts Work, Finances
What do groceries, GPS trackers, and prescription drug copayments have in common?
They are some of the myriad items caregivers may end up paying for to help out an ailing parent or other family member. And these are just the incidentals.
Three out of four caregivers have made changes to their jobs as a result of their caregiving responsibilities, whether going to flex time, working part-time, quitting altogether, or retiring early, according to a Transamerica Institute survey. To ease the financial toll, some caregivers dip into retirement savings or stop their 401(k) contributions. Not surprisingly, caregiving places the most strain on low-income families.
People choose to be caregivers because they feel it’s critically important to help a loved one, said Catherine Collinson, chief executive of the Transamerica Institute.
But, “There’s a cost associated with that and often people don’t think about it,” she said. “Caregiving is not only a huge commitment of time. It can also be a financial risk to the caregiver.”
The big message from Collinson and the other speakers at an MIT symposium last month was: employers and politicians need to acknowledge caregivers’ challenges and start finding effective ways to address them.
Liz O’Donnell was the poster child for disrupted work. As her family’s sole breadwinner, she cobbled together vacation days to care for her mother and father after they were diagnosed with terminal illnesses – ovarian cancer and Alzheimer’s disease – on the same day, July 1, 2014.
Her high-level job gave her the flexibility to work outside the office. But work suffered as she ran from place to place dealing with one urgent medical issue after another. She made business calls from the garden at a hospice, worked while she was at the hospital, and learned to tilt the camera for video conferences so coworkers wouldn’t know she was in her car.
“I felt so alone that summer,” said O’Donnell, who wrote a book about her experience. “We’ve got to do better, and I know we can do better.”
Caregiving is isolating in part because it is very time-consuming. Transamerica found that half of all caregivers devote, at minimum, 50 hours per month to tasks like managing a family member’s home and assisting with doctor’s appointments. Caregivers typically spend $150 a month of their own money on the care recipient but many spend much more.
Chaiwoo Lee of MIT’s AgeLab said that it will become increasingly important to support caregivers, because the U.S. population is aging so rapidly.
“We’re all going to be doing this in the future, and we need to get ready for it,” she said.
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